How to Join the RUBHPSR

All investigators interested in collecting bleeding history phenotypes are invited to join the RUBHPSR.

If you would like to evaluate the Phenotype Recording Instrument (PRI) for your research needs, you will find instructions in the “User’s Manual for Evaluation of the PRI.”

If you would like to join the RUBHPSR, we suggest that you read the “Standard Operating Procedures for Investigators Using the RUBHPSR.” If after reviewing the standard operating procedures, you would like to consider joining the RUBHPSR, we recommend that you review the Level 1and Level 2 Agreement Letters.

Investigators who select Level 1 access will be required to contribute their data to an aggregate database, and in return will be offered access to this database. Investigators who select Level 2 access will have the privilege of access to their own data.

For additional information, please email Yupu Liang.

We look forward to working with you!